‘I am part of spina bifida statistics’

At six months, my mother noticed a peculiar swelling on the lower part of my tiny back. It quickly grew into a huge sac and prompted a rush to the hospital. Following tests, the doctor determined I had spina bifida, a birth defect in which the spine and spinal cord don’t form properly.  The National Institutes of Health reports up to 10 of every 1,000 babies have it. An estimated 1,400 children are born with spina bifida annually in Uganda.

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